So this post is out of time compared to the other posts but I really felt like I needed to express my opinions on something that happened in the last few days. Since Freddie's diagnosis I have joined a couple of Facebook support groups and the other day I posted asking for recommendations for something to help keep the hemangioma out of his eye. I did get some really good suggestions from the group but then I also had a private message from a doctor in America. It all seemed legit and I'd seen the name mentioned all over the Facebook groups so I took what they was saying very seriously. The doctor advised she been speaking to some other expert doctors and that Freddie's hemangioma needed to be removed sooner rather than later to help prevent any further damage to his eyes, they also suggested that there had possibly already been damage caused to his eyes. This obviously sent my anxiety sky high and I led awake all night last night trying to think about what we were going to do, what was best for Freddie, why would our doctor not say anything about this and are they not treating Freddie properly? Today I decided to email Freddie's doctor at Great Ormond Street and ask why these American doctor's had such a different view on Freddie's future treatment. She called me this afternoon and explained to me that although this person who had contacted me is a doctor in the PhD sense, they are not a dermatology Doctor. She then explained that due to the complications Freddie had when he was born with the heart failure and his hemangioma communicating with the blood vessels at the back of his eyes, surgery is going to be a complicated and quite lengthy process and not something we can just rush into which is why we've decided to wait until he's a bit older as long as long as there are no impacts on his vision. I feel so angry that I've allowed this doctor to fill my head with the possibility that our doctors weren't good enough and that they weren't doing what was right for Freddie when that's all they have right from the start and I feel guilty for not trusting their intentions for him. What I'm trying to say from this post is that you should always trust your intuition and as a mum I feel that's the strongest thing you have when it comes to the care of your baby. I've always trusted Freddie's doctors at Great Ormond Street and to have that questioned has really hit me hard. I will from now on always go with the best medical opinion and that is the opinion of his doctors here, who understands his condition and circumstances better than anyone. Freddie is cared for by a world leading specialist team for hemangiomas in one of the best hospitals in the world.
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